Peggy (Margaret) Kern, University of Melbourne, Australia
Anoo Bhopti, Monash University, Australia
Katharine Lancaster, La Trobe University, Australia
Sylvana Mahmic, UNSW Sydney, Australia
Annick Janson, prev.University of Victoria in Wellington, New Zealand
Uri Sternberg, UQ Business School, Australia
Nelly Todorova, Canterbury University, New Zealand
Past researchers
Tim Moore, Murdoch Children's Research Institute
Janine Morrah, Massey University
Rachel Taylor, Swinburne University
Yanchen Zhang, Iowa University, USA
Since our launch in 2015, we have collected data before, during and after interventions to measure the impact of our peer-led programs for parents of children raising children with disability.
Our evaluation process is well established and has been reviewed in-depth by 3 different teams:
1. The 2018 Murdoch Children Research Institute external evaluation of our program reported that our processes, outcomes and measures consistently demonstrate increases in goal achievement, engagement, empowerment, hope and wellbeing for participants (https://tinyurl.com/MCRI-eval).
2. In 2019 a research grant from the Melbourne Disability Institute funded a collaboration with researchers from 5 Australian, a New Zealand (University of Victoria in Wellington) and a USA (Iowa University) academic institutions.
The group is led by Dr. Peggy Kern, Assoc. Prof. Psychology, Melbourne Graduate School of Education a recognised expert working in schools across Australia, and Dr. Annick Janson.This included reviewing and updating our manualised research protocol document, ethics approvals and data analysis methodologies. Their evaluation was consistent with the 2018 evaluation. They also provided recommendations, such as updating our ethics approvals and shortening the number of survey items so as to optimise participants’ response time and concentration, which have been implemented.
The research and evaluation teams were impressed with the consistency observed across our cohorts - observing the ongoing trend displayed by all groups - small and large - in the high number of goals achieved, and of improvement in empowerment, wellbeing and hope.
3. The Centre for Disability Studies, University of Sydney trained our parent-facilitators to collect data as participant-observers. Parent facilitators are also trained all year long via a peer-worker coordinator through ongoing performance evaluations. Remaining data is collected via automated protocols (sending a survey following a specific session), or via coordinators (investigating red flags, such as low wellbeing scores). Data are collated in real-time through a bespoke online platform which collects documents, photos and materials so:
Facilitators receive ongoing feedback on participants engagement
Program Coordinators monitor participants’ progress for quality control
Researchers receive data as it is collected.
Our Publications
Under review
Janson, A. (Under review) Measuring empowerment and engagement of Early Intervention practitioners training to facilitate Pictability a novel vision setting tool.
Janson, A. (in preparation) Supporting parents of young children with disability or delay to engage in participatory behaviours: Measuring flow during vision and goal setting sessions.
Heyworth, M, & Mahmic, S. (Under review). Families as peer workers: Implementing an innovative workforce in ECI organisations.
Publications
Mahmic, S., Kern, M.L., Janson, A. Tracey, D. Johnston, C. (in press) Powering up Family Systems Using Systems-Informed Positive Psychology: Parent-Peer Workers as Levers for Change, The Oxford Handbook of Positive Psychology and Disability, Second Edition, Eds: Andrews, E. Ayers, K. Dunn, D.S & Wehmeyer, M.
Lancaster. K., Harding. K., Kern, M. L., Mahmic. S., Bayasgalan, M., Janson, A. & Bhopti, A. (2024). Exploring long-term outcomes of a peer support program for parents/carers of children with disability in Australia. Child: Health, Care and Development. (access here)
Lancaster, K., Bhopti, A., Kern, M.L., Taylor, R., Janson, A. & Harding, K. (2022) Effectiveness of peer support programs for improving well-being and quality of life in parents/carers of children with disability or chronic illness: A systematic review. Child: Care, Health and Development. (access here)
Taylor, R. & Kern, M.L. (2022) Annick Janson and Sylvana Mahmic: Ways to Wellbeing for Parents of Children With a Disability. Eds: Goodman Hayward, P. et al. Women Community Leaders and Their Impact as Global Changemakers. IGI Global. DOI: 10.4018/978-1-6684-2490-2.ch039
Zhang, Y., Bayasgalan, M. Mahmic, S., Janson, A. & Kern, M.L. (2022) IIMHL & MHN COVID-19 innovations case study series: Supporting the wellbeing of parents raising children with disabilities and developmental delays: Peer support goes online through the COVID-19 pandemic. [publication details to follow]
Bhopti, A., Lancaster, K., Zhang, Y., & Janson, A. (2022) IIMHL & MHN COVID-19 innovations case study series: Accessible supported decision-making online platform for families raising children with disabilities and developmental delays. [publication details to follow]
Lancaster, K. (2022). Exploring Long-Term Outcomes of a Peer Support Program for Parents/Caregivers of Children with Disability in Australia (Doctoral dissertation, La Trobe University).
Lancaster, K. Bhopti, A. Margaret Kern, M., Janson, A., Taylor, R. & Harding, K. (2021) Effectiveness of peer support programs for improving well-being and empowerment in parents/caregivers of children with disability or chronic illness: a systematic review [submitted]
Mahmic S, Kern M.L. & Janson A (2021) Identifying and Shifting Disempowering Paradigms for Families of Children With Disability Through a System Informed Positive Psychology Approach. Frontiers in Psychology. 12:663640. doi: 10.3389/fpsyg.2021.663640
Bhopti, A. (2021) Family quality of life when there is a child with disability: A call for strength-based services. .Journal of Applied Research in Intellectual Disabilities. 34(5): 1232.
Janson, A. & Kok, S. (2021) Energising and empowering families to build capacity through participation..Journal of Applied Research in Intellectual Disabilities. 34(5): 1232.
Lancaster, K. (2021) Are peer support programs for parents of children with disability effective? A systematic review. .Journal of Applied Research in Intellectual Disabilities. 34(5): 1232-1232.
Mahmic, S. & Kern, M.L. (2021) Empowering families through a system-informed approach to developing wellbeing literacy. .Journal of Applied Research in Intellectual Disabilities. 34(5): 1231-1232.
Janson, A. & Janson, M. (2019) Making Space for Social Integration. Sage Adv. June 13.
Heyworth, M. (2018) Families as Peer Workers in Early Intervention Organisations: Literature Review, Plumtree Children Services: Sydney, Australia.
Janson, A. (2018) Testing a novel parents participation pathway. Advance.
Janson, A., Mahmic, S. (2018) Embedding positive psychology and flourish thinking in peer networks for parents raising children with disability: A game-changer. EGL publisher.
Janson, A., Mahmic, S., Benge, T. & Herbert, C. (2018) How a transformational Collective Benefit Mindset experience prompted parents raising children with disability to launch a peer network. Semantic Scholar.
Mahmic, S. and Janson, A. (2018) Now and Next: An innovative leadership pipeline for families raising young children with disability or delay: https://www.centreforwelfarereform.org/library/now-and-next.html
Moore, T., Fong, M., & Rushton, S. (2018). Evaluation: Now and Next program. Plumtree Children’s Services, Inc. & Murdoch Children’s Research Institute. Parkville, VIC: Centre for Community Child Health.
O’Brien, P., Taylor, D., & Riches, T. (2018). The Role of Peer Facilitators in the Now & Next Program. Centre for Disability Studies, University of Sydney.
Heyworth, M., Mahmic, S. and Janson, A. (2017) Now and Next: A radically new way to build peer leadership in families raising young children with disability or development delay. International Journal of Disability, Community and Rehabilitation (http://www.ijdcr.ca/VOL15_01/index.shtml)
Heyworth, M. (2017) Parent-Professional Relationship Statement: Working in partnership with professionals. Available at:
https://www.centreforwelfarereform.org/library/parent-professional-relationship.html
Conference presentations
Mahmic, S. (2024) Building family capacity through peer support. Presented at 3rd Early Intervention Conference, Singapore, 26 April.
Kern, P.L, Mahmic, S. , Zhang, Y., Lancaster, K., Taylor, R., Bayasgalan, M., Morrah, J., Bhopti, A., Moore, T. & Janson, A. (2023) Now & Next: An innovative SIPP-informed, parent-led program for building capacity in families of children with disability. Presented at: International Positive Psychology Association 8th IPPA World Congress 2023, Vancouver, BC (20-23 July)
Bhopti, A. Moore, T., Zhang, Y., Lancaster, Y., Taylor, R., Mahmic, S., Janson, A., & Kern, M.L. (2023) Now and Next, an innovative parent-led program for building capacity in families of children with disability grounded within a system informed positive psychology perspective. International Congress on Evidence-based Parenting Support (ICEPS), (6-8 June). Virtual
Zhang, Y., Bayasgalan, M., Mahmic, S., Janson, A., Taylor, R & Kern, M.L. (2022) IIMHL & MHN COVID-19 innovations case study series: Supporting the wellbeing of parents raising children with disabilities and developmental delays: Peer support goes online through the COVID-19 pandemic. NHS/IIMHL link
Bhopti, A., Lancaster, K., Zhang, Y., & Janson, A. (2022) IIMHL & MHN COVID-19 innovations case study series: Accessible supported decision-making online platform for families raising children with disabilities and developmental delays. NHS/IIMHL link
Zhang, Y. Janson, A., Kern, M.L & Bayasgalan, M. (2021) “We Are in This Together”: Multilevel Examination of an International Positive Psychology Empowerment Program for Parents of Children with Disabilities. Society of Clinical Child & Adolescent Psychology. Journal of Clinical Child and Adolescent Psychology (JCCAP) Future Directions Forum (17-19 June)
Bayasgalan, M., Bhopti, A. Janson, A., Kern, M.L., Lancaster, K., Mahmic, S., Moore, T., Morrah, J. & Taylor, J. (2021) In what ways could positive psychology interventions impact parents raising children with disabilities? Implications for parents, professionals and systems: A panel discussion. New Zealand Association of Positive Psychology (NZAPP) Conference (July 27).
Williams, G., Goldstien, R. & Janson, A. (2020) Testing a novel Parents Participatory Pathway. Early Years Conference, Vancouver, Canada (Jan 30-Feb 1).
Bayasgalan, M., Moore, T. Mahmic, S. & Janson, A (2019) Evaluation of an innovative parent-led program for building family capacity, International Society on Early Intervention (ISEI), Sydney, Australia (June 25-28).
Benge, T., Herbert, C. & Janson, A. (2019) Family-lead peer network formation: Translating knowledge across cultures. International Society on Early Intervention (ISEI), Sydney, Australia (June 25-28).
Davies, S. H. & Kok S. (2019) Empowering parents to be more effective in early intervention. International Society on Early Intervention (ISEI), Sydney, Australia (June 25-28).
Mahmic, S. (2019) Individual funding and families of young children with delays or disabilities: An Australian perspective. International Society on Early Intervention (ISEI), Sydney, Australia (June 25-28).
Williams, G. and Janson, A. (2019) Experiential training in novel 'participatory engagement mechanisms: Early Intervention practitioners share their learning. International Society on Early Intervention (ISEI) Conference. Sydney (June 25-28).
Janson, A., Mahmic, S., Benge, T. and Herbert, C. (2018) Positive parent education for families raising children with disability: Supporting the emergence of a Collective Benefit Mindset. New Zealand Association of Positive Psychology 4th Biennal Conference in Positive Psychology, University of Waikato, Hamilton, New Zealand (24 Novembre).
Janson, A. (2018) Integrer la vision prospective du parcours de vie et le savoir des familles dans un outil de formalisation du projet de vie [translation: Embedding the prospective lived experience and knowledge of families into a practical planning tool]. 5emes Rencontres Scientifiques de la CNSA, Beffroi de Montrouge, Paris (17-18 Octobre).
Heyworth, M. (2018) Building the size and diversity of the workforce. NDS Conference Outside the Box, Sydney (10-11 September).
Kalemkeridis, M. (2018) Engaging Fathers of Children with Delay or Disabilities: Parenting and Caring Roles in Early Childhood. Carers NSW 2018 Biennial Conference ‘Caring: Yesterday, Today, Tomorrow.’ (11 October).
Janson, A. and Muir, C. (2018) Family partnership and capacity building: A novel approach. Starship Tele-Paediatrics Update. https://www.starship.org.nz/for-health-professionals/starship-paediatric-update, Starship Hospital, Auckland (March 13).
Mahmic, S. (2018) Keynote Address Now and Next – Capacity building through family leadership, peer work and education, NZDSN Wellington (April 11-12).
Barton, H and Benge, T. (2018) Now and Next: A novel partnership between families and professionals. NZDSN Wellington (April 11-12).
Janson, A. (2017) Co-production (co-design) and organisational impact: The Australian Now and Next experience. European Association of Service Providers to Disability (EASPD) Flourishing Lives: Supportive Communities and Sustainable Development, Montenegro (October 25-27).
Mahmic, S. (2017) Young children with disabilities and family wellbeing: a family leadership approach, International Carers Conference Keynote Address, Adelaide (October 4-6).
Kalemkeridis, M. and Williamson, J. (2017) Being a peer facilitator, Belonging Matters August Conference, Melbourne (August 16-17).
Janson, R. and Janson, A. (2017) Peer networks for sustainable impact. Arts and Society Round Table, Paris, France (October 18).
Mahmic, S. Janson, A., Kalemkeridis, M. and Williamson, J. (2017) Building family leadership through harnessing peer support. ECI: Beyond Possibilities - Investing in the Future Conference, Sydney (May 25-26).
Mahmic, S., Williamson, J., Touma, S. Buffoni, N., Kalemkeridis, M., Le, I., and Janson, A. (2017) Building family leadership through harnessing peer support. International Initiative for Disability Leadership (IIDL) Brag and Steal: Building family capacity to improve outcomes, Sydney (February 27-28).
Mahmic, S. and Janson, A. (2016) Transforming families' early experiences of self-direction. Building Momentum: Turning ideas into action through self-direction, Auckland (November 16-17).
Mahmic, S., Farah, I. Williamson, J and Janson, A. (2016) Families and staff: Shaping new ways of working together. International ECIA Early Childhood Intervention Association, Melbourne (September 7-10).
Mahmic, S. (2016). Pauline McGregor orator. Keynote paper presented at the Twelfth Biennial Annual Conference, Early Childhood Intervention Australia (ECIA), Melbourne, Australia (September 7).
Mahmic, S. and Janson, A. (2015) Designing a novel multimedia planning and implementation that is both innovative and fun! NDIS New World Conference: Disability in the 21st Century, Brisbane (October 27-29).
Janson, A and Kendrick, M. (2015) Building an interactive coaching tool to facilitate transition to Individualized Funding. Claiming full citizenship: Self-determination, Personalization, Individualized Funding, Vancouver (Oct-15-18).
Podcasts
Mahmic, S. (2019) DSC Podcasts. Disability done differently - candid conversations, ECEI and the role of families. Episode 16
Mahmic, S. (2018) Families as peer workers in early childhood intervention. IRISS podcast
Goll, E. (2017) Learn to empower yourself! Interview with Dr. Annick Janson. Empowering Ability website: https://www.empoweringability.org/single-post/2017/11/23/038-Learn-To-Empower-Yourself-with-Dr-Annick-Janson
Blog Case Study
Bharti, S. (2017) Inaugural Now and Next Alumni Conference Online Proceedings. Book Creator blog: https://bookcreator.com/2017/11/using-book-creator-to-publish-conference-proceedings
Mahmic, S., Treloar, R., Farah, I. Taylor, K., Le, I and Janson, A. (2016) Transforming the experience of families raising children with disability. Available at: http://bookcreator.com/blog/2016/01/book-creator-helps-transform-experience-families-affected-disability
Social Media
Blog: http://now-and-next-alumni.blogspot.com
LinkedIn: https://www.linkedin.com/company/now-and-next-program
Now & Next is a suite of evidence-based wellbeing and goal-setting programs launched by Sylvana Mahmic and Dr. Annick Janson, rooted in positive psychology and the science of wellbeing. First launched in 2015, the programs are co-designed with participants to be culturally inclusive, suitable for neurodiverse participants, and now operate across 8 countries including Australia, New Zealand, Canada, Singapore, Albania, Croatia, Ireland, and Finland. The programs have received 6 international awards and been recognised as best practice in Australia and Europe.
The suite spans the full family life course, from parents of very young children navigating early diagnosis and disability, through to young people learning to set their own goals and build independence.
Early Years (Now & Next, for parents/carers of children aged 0–8)
This flagship program is designed for parents and carers of young children with disability, developmental delay, or identified concerns. Delivered in 8 sessions (in person or online, in community groups or intensively), it supports parents to build a positive vision for their child and family, set achievable goals, and develop wellbeing and resilience using tools grounded in positive psychology (including the PERMA model and Pictability, a visual goal-setting tool). Groups run in community languages including Vietnamese, Arabic, and Korean, reaching culturally and linguistically diverse (CALD) families across metropolitan, rural, regional, and very remote communities.
Now & Next Youth (for young people with support needs, approximately 12–25 years)
A peer-based program where young participants, many neurodiverse, use a collaborative game-based format (the Youth Program Map) to plan their futures, identify their strengths, set goals, and coach each other. Piloted in New Zealand with Ministry of Youth Development funding, and gaining traction in Canada. Around 65% of youth participants are neurodiverse.
Pictability
A visual planning and goal-setting tool used across programs and also trained to professionals and facilitators. Over 2,337 families and professionals have used it to develop visions and goals.
Family Conferences and Peer Workforce
7 annual conferences have reached 990 families and professionals internationally. A key feature of the model is growing a trained peer facilitator workforce, with 67 peer facilitators trained and employed across Australia, New Zealand, Singapore, and Canada.
Reach (2016–2025)
5,702 total participants across all programs, including 1,344 Now & Next graduates across 158 groups in 8 countries, 540 Now & Next School/Youth participants, and 355 Pictability facilitators trained.
Early Years Program (1,220 graduates, 2016–December 2025)
Satisfaction is exceptionally high, with 97.5% of parents recommending the program and a Net Promoter Score of 81.2%, rated "Excellent". The completion rate is 80.5%, with 83.6% average attendance per session. Goals achieved during the program include 88.3% of family goals, 84.7% of child goals, and 81.3% of personal goals. Overall wellbeing scores (PERMA) rose from 6.5 to 6.9/10, a statistically significant 6.1% increase across all domains including positive emotions, engagement, relationships, meaning, and accomplishment, with reduced loneliness and negativity. Hope scores increased 10% (from 6.0 to 6.6/8) and empowerment rose 8.8% (from 3.4 to 3.7/5), both statistically significant. Life satisfaction rose from 6.1 to 6.9/10, a 13.1% increase. 38.2% of participants came from CALD backgrounds representing 65 countries of origin and 45 languages, with 22.5% male/father participation, notably high for early childhood intervention. In Australia, 94–97% of participants reported increased individual capacity across all 5 NDIS capacity-building outcome areas.
Youth Program (185 graduates, 2020–December 2025)
The program achieved an exceptional 95% completion rate with 86.2% average session attendance. Participants achieved an average goal success rate of 85.2% (89.5% for Goal 1 and 81% for Goal 2). Overall wellbeing (PERMA) rose from 6.6 to 7.7/10, a 16.7% statistically significant increase. Stress decreased 1.8%, optimism increased 15.4%, and sense of meaning and purpose increased 10.3%. Hope scores showed the largest gain across the entire suite, increasing 24.5% from 5.3 to 6.6/8. Empowerment showed the largest gain across all programs, rising 16.7% from 3.6 to 4.2/5. Life satisfaction rose from 6.3 to 7.7/10, a 15.8% increase bringing youth participants to the national New Zealand average of 7.6/10. Session ratings were consistently high at 7.5 to 8.4/10, with relationship quality rated highest.
Across both programs, the pattern is consistent and compelling: participants who start below national averages for wellbeing and life satisfaction finish the program significantly closer to or on par with those averages, despite the additional challenges they face raising or living with disability. The youth program in particular shows the largest gains in hope and empowerment, suggesting that early investment in these programs across the family lifespan produces compounding benefits as children grow into self-directed young adults.
Now and Next is a group program developed by Plumtree that helps parents and carers of young children with a disability or developmental delay cultivate skills to achieve positive outcomes for their child, family and self. It teaches families about setting goals and provides them with opportunities to connect with other families to inform, support and motivate each other to aim high and see new opportunities for their child now and in the future.
Plumtree delivered the Now and Next program between January 2017 and June 2018 as part of the ‘Building Capacity in Families of Young Children with Disability: A Family Leadership Project’ which was funded by ADHC, Department of Family and Community Services and the NDIA for an Information, Linkages and Capacity Building (ILC) transition project.
The Centre for Community Child Health (the Centre) at Murdoch Children’s Research Institute (MCRI) was commissioned by Plumtree to undertake a process and outcomes evaluation of the Now and Next program. The evaluation looked at data for the 15 Now and Next groups that were run between January 2017 to March 2018 and involved 154 families of young children birth to eight years old who have disabilities or a developmental delay.
The purpose of the evaluation was to examine the Now and Next program and identify participant outcomes to inform decision-making about the future strategic direction and implementation of the Now and Next program. The evaluation used a mix of qualitative and quantitative methods to undertake both a process and outcomes evaluation of the Now and Next program. The process evaluation looked at whether the Now and Next program had been delivered as intended, if it was reaching the target groups and how participants rated the program. The outcome evaluation looked at participant outcomes, in particular, if participants had achieved their short-term goals, whether participants had become empowered and if participant sense of hope or wellbeing had grown. Data was collected by the program through online surveys at the beginning and end of the program and during the program by the peer facilitators of the Now and Next program using a participatory action research approach.
An additional research project undertaken by the Centre for Disability Studies at Sydney University documented case studies of the peer workers. This research is reported separately to the present evaluation.
The process evaluation found that Now and Next program had been delivered to the target group of parents and carers of young children with a disability or developmental delay. The evaluation also found and that the program had been delivered as intended with comprehensive and systematic documentation of the sessions for use by peer facilitators and real-time monitoring of participant feedback incorporated into the program for continuing improvement. Due to the iterative nature of the program, new concepts were tested over the evaluation period. This included delivering the Pictability vision and planning session as a group rather than individually, and trialling new measures to monitor participant outcomes.
The program had high levels of attendance from participants with an average attendance rate across all 15 groups of 79.9% over the eight-week program. The groups had strong levels of participation from culturally and linguistically diverse families (who made up 59.1% of participants) as well as from fathers (who represented 20.8% of participants).
The evaluation found the program was highly successful in providing all parents with the experience of developing and achieving short-term goals. Data was collected on the goals participants chose to address during the program: A total of 134 child goals, 137 family goals and 117 personal goals were recorded. More than nine in ten participants achieved all three of the goals that they set. Of the thirteen parents that did not achieve all three of their goals, ten achieved two of their goals and three achieved one of their goals.
The evaluation also found that the program was successful in empowering parents and growing participants sense of wellbeing. Matched participant data that was available for a subset of participants showed statistically significant increases in participants’ empowerment, sense of hope and wellbeing at the end of the program relative to the start of the program. Other participant measures are indicating that the program is also increasing participants’ sense of agency.
Now and Next has a number of unique features that warrant further investigation. Possible research studies include:
· Further trials of the outcomes of the Now and Next program in different sites and populations.
· Tracking one or more cohorts of parents over time to see what the long-term effects are, and whether
the short-term gains found in the present evaluation are sustained.
· Comparison with other programs and pathways. It would be valuable to compare outcomes for those who enter the NDIS after a Now and Next experience with those who go through the standard pathway.
· Determining which of the key features of Now and Next are the key ingredients for the effectiveness of the program will require further experimentation and research.
· Exploring the timing of program in relation when parents engage with professionals.
In contrast to current early childhood intervention services, Now and Next focusses on building family capacity using new approaches that are peer-led, provide connection with other families, focus on empowerment, agency and wellbeing and emphasise a whole family approach.
The Now and Next program demonstrates the power of parent-to-parent support when properly structured and facilitated. For parents of young children with developmental disabilities, such support can be beneficial in a variety of ways: in helping them clarify their goals for their children, families and themselves; in promoting their personal capabilities to meet these needs; in fostering a positive and constructive approach to the challenges they face; and in contributing to their general well-being. These are goals that early childhood intervention services around the world aspire to, so the Now and Next program offers a program for achieving those goals with families who have young children with developmental disabilities or delays. The current evaluation has shown that the program is also effective with non-English speaking groups, suggesting that the program could have widespread potential.
Click here and scroll down to see Dr. Tim Moore's presentation of these results at the 2019 International Society for Early Intervention conference.